David and Cooper Rhys-Jones

Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by a mutation on Chromosome 15. It can affect anyone, regardless of their genetic background, which is why our fundraising effort is named the 15 for 15 Challenge.

This condition is characterized by an insatiable hunger that typically begins around age 2 and persists for life. Additional challenges include muscle weakness, developmental delays, and behavioral issues such as temper outbursts and compulsive behaviors, making daily tasks and interactions profoundly difficult.

Imagine living with constant, intense hunger alongside feelings of anxiety, exhaustion, and frustration every day. This is the reality for those with PWS.

Join the 15 for 15 Challenge to help support individuals living with this challenging condition. Together, we can kick goals for Prader-Willi syndrome.

Get Involved

The success of the 15 FOR 15 Challenge rests on the incredible dedication of our fundraisers, volunteers, supporters, and donors like you. Get involved today in a variety of impactful ways and help transform the lives of those affected by Prader-Willi Syndrome.

Fundraise for us

Anyone can raise funds to support the PWS Community. Create your own fundraiser, or get involved with one, and help to make a difference.

Organise an event

Anyone can hold a fundraiser from a morning tea or trivia night to an online fundraiser or an Orange Day at school.

Host a Collection container

If you have a business or work in a school, we can supply you with a collection container to collect donations year-round.

Buy a Raffle Ticket

Enter the draw to win a luxury escape to Bail.

Shop to Support, Wear to Advocate

Every item purchased, isn't just a piece of clothing; it's a beacon of hope and a banner of advocacy for those living with Prader-Willi Syndrome.

Volunteer

We are always on the lookout for volunteers to help us fundraise

Win a dream Bali Escape - 5 nights for 6 guests plus travel

Purchase a $15 entry into the Super draw to win 5 nights of accommodation at Sinta Villa in Bali for 6 guests plus $1,500 flight voucher!

Sinta Villa is located in the heart of Seminyak, surrounded by amazing restaurants and boutique shopping. A short 10 minute walk to the beach, the villa is fully private and only our guests have access to the full facilities.

*Terms and Conditions apply

Buy a Raffle Ticket

Meet our inspirational PWS Community

Your Impact

Your support helps The Prader-Willi Syndrome Association of Victoria deliver the best possible care to people living with Prader-Willi Syndrome.

State-Wide Care Plan - Main Project

The PWS State-Wide Care Plan—led by Professor Katrina Williams of Monash University's Department of Paediatrics, in close consultation with Associate Professor Tom Connell from The Royal Children’s Hospital. Together with Monash Partners Academic Health Science Centre, we are developing a groundbreaking, evidence-based model of care for children with Prader-Willi Syndrome (PWS) that can be implemented across all Australian hospitals that care for children with PWS. This project aims to provide consistent, proactive healthcare from the earliest stages of life.

Expanding & Enhancing Services

Your contributions drive the expansion of our current programs and the introduction of innovative initiatives tailored to the dynamic needs of the PWS community. These enhancements include enriched support services, educational workshops, and social activities designed to cultivate a robust sense of community and belonging.

Empowering Our Volunteers

Your donations fortify our indispensable volunteers at PWSA Victoria, equipping them with the training and resources necessary to enhance their effectiveness and protect against burnout. This vital support helps maintain the resilience and readiness of those who serve at the heart of our community.

Advocacy & Awareness

Your generosity bolsters our advocacy efforts, amplifying awareness about Prader-Willi Syndrome and underscoring the critical need for robust support services. Enhanced public understanding can lead to significant policy shifts, increase funding, and elevate the recognition of support organizations, making a profound difference in the lives of many.

Sustainability & Growth

Your support ensures the financial health of PWSA Victoria, enabling us to plan and operate confidently into the future. This stability is crucial for sustaining our essential services through all circumstances.

Improving Infrastructure

Your investment in our infrastructure translates into improved service delivery. This encompasses everything from upgrading our website to adopting advanced software solutions that streamline volunteer coordination and member engagement, ensuring efficiency and impact.

Community Outreach

With your help, we can implement strategic outreach and engagement efforts to expand our membership base and ensure that families impacted by PWS are well-informed and able to access the support they need.

Prader-Willi Syndrome Association of Victoria

The Prader-Willi Syndrome Association of Victoria Inc. (PWSA Victoria) is a volunteer-led, ACNC-registered Australian Charity.

Since its inception in 1979, the PWSA Victoria has played a pivotal role in providing comprehensive on-the-ground support to families, professionals and community organisations around Australia.

The PWSA Victoria has become an essential support network for the PWS community. The organisation has been instrumental in addressing and championing supports and services that address the complex and multifaceted needs of those living with PWS and their community.

Through peer support, education, advocacy and the development of a global awareness campaign, PWSA Victoria has significantly raised knowledge of PWS for both its members and others within the sphere of influence.

The 15 for 15 Challenge - In 2013, PWSA Victoria launched the PWS Go Orange campaign, uniting communities worldwide by designating the last Friday of May as PWS Awareness Day and adopting orange to symbolise support.

This initiative was further enhanced by the introduction of the 15 for 15 Challenge in 2018, championed by AFL legend David Rhys-Jones, whose son lives with PWS, amplifying awareness and support.

Through innovative campaigns, educational outreach, and engaging fundraising activities, PWSA Victoria has demonstrated an unparalleled capacity to lead impactful global awareness movements, showcasing a proven track record of inspiring worldwide support and recognition for Prader-Willi Syndrome.

Visit PWSAVic.org.au

The 15 for 15 Challenge is supported by the generosity and hard work of many organisations.

Special Thank you to the following Organisations for their support.



Major Supporters - Tyrrell Publicity & Promotions, Katz Entertainment, Club-Draws

Australian Business Number

Prader-Willi Syndrome Association of Victoria Inc. ABN: 93 836 682 679

Prader-Willi Syndrome Association of Victoria Inc. is endorsed as a Deductible Gift Recipient (DGR) from 01 Jul 2000. 

Australian Charities and Not for Profit

The Prader-Willi Syndrome Association of Victoria Inc. is registered with the Australian Charities and Not-for-profits Commission (ACNC). Details can be found here https://www.acnc.gov.au/charity

Deductible gift recipient status 

DGR Reference Number: 900462951

Donors wishing to claim a deduction for gifts/donations $2 and over should make reference to the Prader-Willi Syndrome Association of Victoria Inc. and our DGR number (900462951) in their payment records.
Further information relating to Gifts and Fundraising can be accessed here. https://www.ato.gov.au/Non-profit/Gifts-and-fundraising/

Copyright

PWS 15for15 Challenge - Copyright Chris Bain;
PWS 15for15 Challenge Australia - Copyright Chris Bain 2019